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A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease

Owoo, Francesca K
http://orcid.org/0000-0002-4475-2779
http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742

Abstract Details

2017, Doctor of Philosophy, University of Akron, Marriage and Family Counseling/Therapy.
This qualitative phenomenological study explored the lived experiences of primary caregivers when caring for a child with sickle cell disease (SCD). Specifically, the researcher’s goal was to understand how these experiences shape and impact a primary caregiver’s experience of daily living. The researcher provided a comprehensive review of the history of SCD along with its effects on the familial unit, as well as the primary caregiver. Social inequalities and health care disparities were also discussed in relation to the role it may play in receiving adequate health care for a child with SCD. With the integration of a focused genogram, the researcher was able to evaluate the intergenerational transmission of caregiving behaviors experienced with SCD. Six primary caregivers provided personal accounts of their experiences when caring for a child with SCD in the African American community while addressing the following research questions: (1) What is the lived experience of the primary caregiver of a child with SCD? (2) What is the lived experience of primary caregivers of a child with SCD specifically regarding child’s medical services? and (3) What are the parallels in caregiving behaviors between caregivers of a child with SCD and the caregiving behaviors of past generation caregivers? Lastly, a discussion of the findings, limitations of the study, implications for family therapists and further research were addressed.
Karin Jordan (Committee Chair)
122 p.
African Americans; Black Studies; Counseling Education; Families and Family Life; Genetics; Health; Health Care; Health Care Management; Health Education; Individual and Family Studies; Mental Health; Minority and Ethnic Groups; Psychology; Psychotherapy; Public Health; Public Policy; Social Work; Womens Studies
sickle cell disease; phenomenological; primary caregivers; chronic illness; multigenerational transmission process; Intergenerational Family Therapy; healthcare disparities; African American; genogram

Recommended Citations

Citations

  • Owoo, F. K. (2017). A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease [Doctoral dissertation, University of Akron]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742

    APA Style (7th edition)

  • Owoo, Francesca. A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease . 2017. University of Akron, Doctoral dissertation. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742.

    MLA Style (8th edition)

  • Owoo, Francesca. "A Phenomenological Study of the Lived Experiences of Caregivers of Children with Sickle Cell Disease ." Doctoral dissertation, University of Akron, 2017. http://rave.ohiolink.edu/etdc/view?acc_num=akron149149171461742

    Chicago Manual of Style (17th edition)

akron149149171461742
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© 2017, all rights reserved.
This open access ETD is published by University of Akron and OhioLINK.