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Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health

Kraft, Kathryn A
http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617

Abstract Details

2014, Psy. D., Antioch University, Antioch New England: Clinical Psychology.
In this dissertation, I discuss the medical and psychological needs of families with children with Congenital Adrenal Hyperplasia (CAH). Due to these needs, I have designed and described a program of social support and psychoeducation to be offered to parents and families. Specifically, I discuss the difficulty that parents have when finding out that their child has CAH, the emotional toll this takes on a parent, on their relationship, and on their family. Using a Family Systems Illness Model, I designed a program that takes into account family functioning, organization, structure, and communication when determining what would be most helpful for these families at different stages in their adaptation to this disease. I then lay out a clear plan of action for implementing this program in settings where parents would gather and connect such as children’s hospitals that treat their children. This program could also be used outside of a hospital setting in many different supportive environments.
Susan Hawes, PhD (Committee Chair)
Gina Pasquale, PsyD (Committee Member)
Laura Edwards-Leeper, PhD (Committee Member)
132 p.
Clinical Psychology
Congenital Adrenal Hyperplasia; CAH; Family Systems Illness model; family sculpture; narrative family intervention; chronic childhood illness; quality of life

Recommended Citations

Citations

  • Kraft, K. A. (2014). Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health [Doctoral dissertation, Antioch University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617

    APA Style (7th edition)

  • Kraft, Kathryn. Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health . 2014. Antioch University, Doctoral dissertation. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617.

    MLA Style (8th edition)

  • Kraft, Kathryn. "Supporting Families with Congenital Adrenal Hyperplasia: Encouraging Whole Family Health ." Doctoral dissertation, Antioch University, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1405512617

    Chicago Manual of Style (17th edition)

antioch1405512617
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© 2014, all rights reserved.
This open access ETD is published by Antioch University and OhioLINK.