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Impact of Carrier Screening on Pregnant Women’s Knowledge of Sickle Cell Anemia

Moxley, Kristan Michelle

Abstract Details

2008, Master of Sciences, Case Western Reserve University, Genetic Counseling Training Program.
This descriptive study assessed 154 pregnant African American women’s knowledge of and 11 health care providers’ protocols for sickle cell disease carrier screening. The patient survey consisted of questions about sickle cell disease (SCD), incidence, inheritance and knowledge of trait status. Overall, participants were deficient in their knowledge of SCD as evidenced by scoring only approximately 33% on 11 knowledge questions. Factors found to be associated with increased knowledge about SCD included knowing someone with SCD, knowing one’s trait status, and completing at least some college. Health care providers’ protocols were to report carrier status for sickle cell trait (SCT) to patients who tested positive, but usually not to inform individuals who tested negative for trait. Based on these findings, the role of genetic counselors in educating patients on SCD should be pursued in order to better inform those at highest risk, to decrease unnecessary testing based on patient unawareness of trait status and to assist professionals providing care to this population.
Anne Matthews (Advisor)
90 p.

Recommended Citations

Citations

  • Moxley, K. M. (2008). Impact of Carrier Screening on Pregnant Women’s Knowledge of Sickle Cell Anemia [Master's thesis, Case Western Reserve University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=case1201280917

    APA Style (7th edition)

  • Moxley, Kristan. Impact of Carrier Screening on Pregnant Women’s Knowledge of Sickle Cell Anemia. 2008. Case Western Reserve University, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=case1201280917.

    MLA Style (8th edition)

  • Moxley, Kristan. "Impact of Carrier Screening on Pregnant Women’s Knowledge of Sickle Cell Anemia." Master's thesis, Case Western Reserve University, 2008. http://rave.ohiolink.edu/etdc/view?acc_num=case1201280917

    Chicago Manual of Style (17th edition)