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Sleep and Health Related Quality of Life in Children with Cardiac Disease

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2011, Doctor of Philosophy, Case Western Reserve University, Nursing.
Advances in medical and surgical treatment of congenital and acquired heart disease have resulted in increased survival of affected children. Current estimates suggest that 1.3 million Americans are living with some form of cardiac disease. Empirical evidence indicates that children with cardiac disease experience impaired health related quality of life. Although many of the correlates of health related quality of life in this population are non-modifiable, sleep is a modifiable variable that may be amenable to intervention. Relationships between sleep and health related quality of life have been documented in other populations with other chronic illnesses, yet evidence of these relationships in children with cardiac disease is lacking. Under the guidance of Roy’s Adaptation Model, this descriptive, explanatory study was designed to examine sleep habits and sleep complaints as they relate to quality of life in this population. The School Sleep Habits Survey, PedsQL™ Pediatric Quality of Life Inventory Version 4.0 and the PedsQL™ Cardiac Modules Version 3.0 were completed by 116 children 8-18 years of age with cardiac disease. Parents completed the Children’s Sleep Habits Questionnaire and the Sleep Disturbance Scale for Children. Children with cardiac disease demonstrated impaired quality of life, with children with more severe illness reporting lower health related quality of life. Regression models including therapeutic interventions, severity of illness, presence of heart failure, sleep duration and sleep complaints predicted 19-42% of the variance in health related quality of life. Sleep duration did not differ for children with cardiac disease compared to previously reported mean durations in healthy children. Children with cardiac disease reported more sleep complaints than previously reported by their healthy peers. Children with more severe cardiac disease were found to have more sleep complaints. Sleep complaints were negatively correlated to health related quality of life, such that as sleep complaints increased quality of life decreased. Nearly 20% of the variance in sleep complaints was explained by a regression model including BMI, medications, severity of illness and presence of heart failure. Assessment and optimization of sleep in children with cardiac disease may positively affect health related quality of life in this population.
Elizabeth Damato, PhD (Committee Chair)
Gerard Boyle, MD (Committee Member)
Patricia Higgins, PhD (Committee Member)
Elizabeth Madigan, PhD (Committee Member)
243 p.

Recommended Citations

Citations

  • Brubaker, J. A. (2011). Sleep and Health Related Quality of Life in Children with Cardiac Disease [Doctoral dissertation, Case Western Reserve University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=case1323311423

    APA Style (7th edition)

  • Brubaker, Jennifer. Sleep and Health Related Quality of Life in Children with Cardiac Disease. 2011. Case Western Reserve University, Doctoral dissertation. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=case1323311423.

    MLA Style (8th edition)

  • Brubaker, Jennifer. "Sleep and Health Related Quality of Life in Children with Cardiac Disease." Doctoral dissertation, Case Western Reserve University, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=case1323311423

    Chicago Manual of Style (17th edition)