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Holt Thesis.pdf (3.23 MB)

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Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions

Holt, Erika Tyne
http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340

Abstract Details

2014, Master of Sciences, Case Western Reserve University, Genetic Counseling.
The purpose of this study was to investigate the influence of parental perception of severity of bleeding disorders on parents' quality of life and reproductive decisions. Parents with a child who received care at one of three Hemophilia Treatment Centers in Ohio were invited to complete a questionnaire. Results showed that the majority of participants (n=126) believed their child's bleeding disorder was mild (69.0%) in severity, and that perceived severity differed from the clinical definition of severity. Although initial analyses suggested that perceived severity impacted quality of life, it was not a significant predictor; however, it was found to impact parental burden. Moreover, perceived severity had little impact on reproductive decisions as 71.4% stated that their child's bleeding disorder did not influence reproductive plans. These results suggest that perceived severity may be important in predicting parental burden; however, a combination of factors contributes to quality of life and reproductive decisions.
Anne Matthews, PhD (Committee Chair)
Emily Lisi, MS (Committee Member)
Suzanne DeBrosse, MD (Committee Member)
Larisa Baumanis, MS (Committee Member)
133 p.
Genetics
bleeding disorders; hemophilia; quality of life; reproductive decisions; perceived severity; genetic counseling

Recommended Citations

Citations

  • Holt, E. T. (2014). Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions [Master's thesis, Case Western Reserve University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340

    APA Style (7th edition)

  • Holt, Erika. Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions. 2014. Case Western Reserve University, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340.

    MLA Style (8th edition)

  • Holt, Erika. "Perceptions of Severity of Children's Bleeding Disorders: Impact on Parental Quality of Life and Reproductive Decisions." Master's thesis, Case Western Reserve University, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=case1383060340

    Chicago Manual of Style (17th edition)

case1383060340
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© 2013, all rights reserved.
This open access ETD is published by Case Western Reserve University School of Graduate Studies and OhioLINK.