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The Role of Social Media in the Relationship Between Social Support and Adherence in Children with Cystic Fibrosis

Babyar, Heather Michelle

Abstract Details

2016, PHD, Kent State University, College of Arts and Sciences / Department of Psychological Sciences.
Although person-to-person contact between CF patients is discouraged, the World Wide Web represents a relatively new source of health information and support available online. With this increased access to social networking sites, it is possible for young people with CF to seek out social support online as person-to-person contact is discouraged. The present study aims to examine the social network use of adolescent and young adults with CF regarding social support and explore how social network experiences/exposure affects health related behaviors. In order to describe how social support appears in the context of individuals’ communications on CF social networking websites, we developed a detailed code sheet to capture relevant details of the message threads on a CF specific social networking group website. For remaining study hypotheses, we recruited 60 individuals with CF between the ages of 13-25 and parents (for those participants under the age of 18) for participation at Akron Children’s Hospital CF clinic (30%) or through an online website link posted on CF specific social networking web pages (70%). Results of this study demonstrate that increased social support, especially from family members, contributes to IC adherence. These findings highlight the importance of providing interventions aimed at increasing family social support in order to improve adherence behaviors. Overall, this study is one of the first to investigate how individuals with CF make use of the social networking sites and how they incorporate information from these sites into their lives and complex medical and infection control adherence routines.
Beth Wildman, Ph.D. (Advisor)
Tracy Masterson, Ph.D. (Committee Member)
William Merriman, Ph.D. (Committee Member)
Susan Roxburgh, Ph.D. (Committee Member)
Ryan Claassen, Ph.D. (Committee Member)
137 p.

Recommended Citations

Citations

  • Babyar, H. M. (2016). The Role of Social Media in the Relationship Between Social Support and Adherence in Children with Cystic Fibrosis [Doctoral dissertation, Kent State University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=kent1469545679

    APA Style (7th edition)

  • Babyar, Heather. The Role of Social Media in the Relationship Between Social Support and Adherence in Children with Cystic Fibrosis. 2016. Kent State University, Doctoral dissertation. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=kent1469545679.

    MLA Style (8th edition)

  • Babyar, Heather. "The Role of Social Media in the Relationship Between Social Support and Adherence in Children with Cystic Fibrosis." Doctoral dissertation, Kent State University, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=kent1469545679

    Chicago Manual of Style (17th edition)