Skip to Main Content
Frequently Asked Questions
Submit an ETD
Global Search Box
Need Help?
Keyword Search
Participating Institutions
Advanced Search
School Logo
Files
File List
Neller thesis.pdf (1019.46 KB)
ETD Abstract Container
Abstract Header
Parenting Children with Profound Short Stature in the Post-Genomic Era
Author Info
Neller, Anna Grace
Permalink:
http://rave.ohiolink.edu/etdc/view?acc_num=toledo1467215580
Abstract Details
Year and Degree
2016, Master of Arts, University of Toledo, Sociology.
Abstract
Previous social science research on profound short stature has primarily centered studies on Achondroplasia – with limited attention being given to other conditions which result in profound short stature such as Osteogenesis Imperfecta, Growth Hormone Deficiency, and other conditions which may be placed under the generic label “Failure to Thrive.” This thesis is the first attempt to engage in an interdisciplinary analysis of new diagnostic conditions associated with profound short stature. Employing a grounded theory approach, this study draws from multiple sources of data, including insider research; and seeks to answer the primary research question: what can parents of children with profound short stature teach us about their children’s experiences in the post-genomic era? Results of this study include the complicated, ongoing process of diagnosing, the infantilization, dehumanization and violence experienced by children with profound short stature, barriers in education and their psychosocial effects, and the diversity of identities adopted by parents in describing their children. In conclusion, recognizing the variety of diagnoses which underlies the community of children with profound short stature is a key step in developing a more holistic perspective that integrates interconnected social, psychological, ethical, medical, disability and embodied issues.
Committee
Mark Sherry, PhD (Committee Chair)
Shahna Arps, PhD (Committee Member)
Elias Nigem, PhD (Committee Member)
Pages
149 p.
Subject Headings
Sociology
Keywords
Medical Sociology, Disability Studies, Bioethics, Family Studies, Human Growth Hormone, Children with Restricted Growth, LPA, and MAGIC Foundation
Recommended Citations
Refworks
EndNote
RIS
Mendeley
Citations
Neller, A. G. (2016).
Parenting Children with Profound Short Stature in the Post-Genomic Era
[Master's thesis, University of Toledo]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=toledo1467215580
APA Style (7th edition)
Neller, Anna.
Parenting Children with Profound Short Stature in the Post-Genomic Era.
2016. University of Toledo, Master's thesis.
OhioLINK Electronic Theses and Dissertations Center
, http://rave.ohiolink.edu/etdc/view?acc_num=toledo1467215580.
MLA Style (8th edition)
Neller, Anna. "Parenting Children with Profound Short Stature in the Post-Genomic Era." Master's thesis, University of Toledo, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=toledo1467215580
Chicago Manual of Style (17th edition)
Abstract Footer
Document number:
toledo1467215580
Download Count:
1,281
Copyright Info
© 2016, all rights reserved.
This open access ETD is published by University of Toledo and OhioLINK.