Skip to Main Content
 

Global Search Box

 
 
 
 

ETD Abstract Container

Abstract Header

Parenting Children with Profound Short Stature in the Post-Genomic Era

Neller, Anna Grace

Abstract Details

2016, Master of Arts, University of Toledo, Sociology.
Previous social science research on profound short stature has primarily centered studies on Achondroplasia – with limited attention being given to other conditions which result in profound short stature such as Osteogenesis Imperfecta, Growth Hormone Deficiency, and other conditions which may be placed under the generic label “Failure to Thrive.” This thesis is the first attempt to engage in an interdisciplinary analysis of new diagnostic conditions associated with profound short stature. Employing a grounded theory approach, this study draws from multiple sources of data, including insider research; and seeks to answer the primary research question: what can parents of children with profound short stature teach us about their children’s experiences in the post-genomic era? Results of this study include the complicated, ongoing process of diagnosing, the infantilization, dehumanization and violence experienced by children with profound short stature, barriers in education and their psychosocial effects, and the diversity of identities adopted by parents in describing their children. In conclusion, recognizing the variety of diagnoses which underlies the community of children with profound short stature is a key step in developing a more holistic perspective that integrates interconnected social, psychological, ethical, medical, disability and embodied issues.
Mark Sherry, PhD (Committee Chair)
Shahna Arps, PhD (Committee Member)
Elias Nigem, PhD (Committee Member)
149 p.

Recommended Citations

Citations

  • Neller, A. G. (2016). Parenting Children with Profound Short Stature in the Post-Genomic Era [Master's thesis, University of Toledo]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=toledo1467215580

    APA Style (7th edition)

  • Neller, Anna. Parenting Children with Profound Short Stature in the Post-Genomic Era. 2016. University of Toledo, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=toledo1467215580.

    MLA Style (8th edition)

  • Neller, Anna. "Parenting Children with Profound Short Stature in the Post-Genomic Era." Master's thesis, University of Toledo, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=toledo1467215580

    Chicago Manual of Style (17th edition)