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Mothers’ Perceptions Of Family Health History And An Online Parent-Generated Family Health History Tool

Berger, Kelly A.

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2011, MS, University of Cincinnati, Medicine: Genetic Counseling.
Purpose: To learn about parents’ 1) perceptions of the meaning of family health history (FHH) 2) prior experience with FHH, and 3) impressions of and willingness to complete the Surgeon General’s FHH tool called My Family Health Portrait (MFHP). Methods: Qualitative in-depth interviews were conducted with parents recruited through a newsletter and advertisements at Cincinnati Children’s Hospital Medical Center. Themes were developed using deductive codes based on pre-determined interview questions and inductive codes based on interviewee responses. Interviews were transcribed and then coded by two coders. Inter-rater reliability was determined using Cohen’s Kappa. Results: Twenty-five respondents were interviewed. Nineteen (76%) mothers described FHH as being aware of the diseases that run in families. When asked about value of FHH six mothers (24%) discussed prevention of disease or diagnosing at an early stage. Sixteen (64%) mothers reported talking to their pediatrician about health problems that run in their family. All participants had positive impressions of MFHP after being shown the tool. Most participants felt MFHP was user-friendly and an easy program that facilitated FHH collection (n=17; 68%). The most commonly expressed challenge to completing MFHP was a lack of knowledge about health conditions within the family. Most respondents (n=23; 92%) stated they would be able to complete MFHP prior to their child’s medical appointment. Conclusion: These findings suggest parents are interested in FHH and may be motivated to complete a parent-generated FHH outside of a pediatric appointment. Future research should focus on implementation and usability of parent-generated FHH in clinical practice.
Melanie Myers, PhD (Committee Chair)
Cynthia Prows, , (Committee Member)
Robert Siegel, , (Committee Member)
John Lynch, PhD (Committee Member)
36 p.

Recommended Citations

Citations

  • Berger, K. A. (2011). Mothers’ Perceptions Of Family Health History And An Online Parent-Generated Family Health History Tool [Master's thesis, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1307125548

    APA Style (7th edition)

  • Berger, Kelly. Mothers’ Perceptions Of Family Health History And An Online Parent-Generated Family Health History Tool. 2011. University of Cincinnati, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1307125548.

    MLA Style (8th edition)

  • Berger, Kelly. "Mothers’ Perceptions Of Family Health History And An Online Parent-Generated Family Health History Tool." Master's thesis, University of Cincinnati, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1307125548

    Chicago Manual of Style (17th edition)