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The Genetic Counseling Experience in a Multidisciplinary Childhood Cancer Survivor Center

Armstrong, Katherine B.
http://rave.ohiolink.edu/etdc/view?acc_num=ucin1337101530

Abstract Details

2012, MS, University of Cincinnati, Medicine: Genetic Counseling.
Background. The majority of children who are diagnosed with cancer are surviving into adulthood, which has led to the development of a specialized area of multidisciplinary healthcare specific to cancer survivorship and focuses on detection, provision of care, and counseling for the survivor regarding the late effects of therapy. In 2007, the Cincinnati Children’s Hospital Medical Center (CCHMC) Cancer Survivor Center (CSC) added a certified genetic counselor to provide genetic risk assessment for hereditary cancer syndromes and genetic counseling to pediatric cancer survivors and their families. Methods. Survivors in the CSC who were at least eighteen years old (N=75) and the parent/caregiver of survivors under the age of eighteen (N=39) were asked about their genetic counseling experience through a paper or online questionnaire. In addition, 148 survivors and parents/caregivers who had not received genetic counseling were surveyed. All participants were also asked their opinion of the most appropriate time for childhood cancer survivors to receive genetic counseling. Results. Most participants expressed satisfaction with the genetic counseling service (82% of survivors and 89% of parents/caregivers), and 78% of survivors and 74% of parents/caregivers found the information useful. Overall, about 40% of patients and parents/caregivers indicated that they would have preferred genetic counseling 1-5 years after the completion of cancer treatment, but the remaining participants were split in determining the most appropriate time to receive genetic counseling in relation to the time of diagnosis and during cancer treatment. Conclusions. This study reveals that genetic counseling in a pediatric cancer survivor clinic is a desired and valuable service. Discussion of the impact of a family history of cancer and the presence of hereditary cancer syndromes should begin around the time of the childhood cancer diagnosis and should be revisited throughout and after the child’s cancer treatment.
Rajaram Nagarajan, MD (Committee Chair)
Debra Kent, MSN (Committee Member)
Sara Rankin Knapke, MS (Committee Member)
45 p.
Genetics
childhood cancer survivor; multidisciplinary care; genetic counseling; patient satisfaction; ; ;

Recommended Citations

Citations

  • Armstrong, K. B. (2012). The Genetic Counseling Experience in a Multidisciplinary Childhood Cancer Survivor Center [Master's thesis, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1337101530

    APA Style (7th edition)

  • Armstrong, Katherine. The Genetic Counseling Experience in a Multidisciplinary Childhood Cancer Survivor Center. 2012. University of Cincinnati, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1337101530.

    MLA Style (8th edition)

  • Armstrong, Katherine. "The Genetic Counseling Experience in a Multidisciplinary Childhood Cancer Survivor Center." Master's thesis, University of Cincinnati, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1337101530

    Chicago Manual of Style (17th edition)

ucin1337101530
304
© 2012, all rights reserved.
This open access ETD is published by University of Cincinnati and OhioLINK.