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Unmet Needs of Patients and Caregivers following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission

Kreitzer, Natalie

Abstract Details

2018, MS, University of Cincinnati, Medicine: Clinical and Translational Research.
Objectives: To explore and describe the subjective unmet needs of informal caregivers of survivors of moderate and severe traumatic brain injury (TBI), and survivors who were well enough to participate, through qualitative research methods, particularly during care transitions. Design: A qualitative exploratory study using semi-structured interviews with caregivers of moderate and severe TBI survivors and patients able to participate. Interviews were conducted 72 hours, one month, three months, and six months post injury. Transcripts were analyzed using thematic analysis approach. Setting: Patients were recruited from a level 1 trauma center. Caregivers were recruited through eligible patients. Patients: Patients 18 years older with a moderate to severe TBI within 72 hours who were not expected to imminently die of their injuries were recruited. Caregivers were family members or friends who planned to provide informal care for the patient after the TBI. Interventions: None Measurements and Main Results: Eighteen patient-caregiver dyads were enrolled. One patient died within 72 hours. At 72 hours, 17 caregivers were interviewed; at one-month 13 caregivers were interviewed; at three months 11 caregivers and one survivor were interviewed; and, at six months 11 caregivers and seven survivors were interviewed. Five main themes were identified in the qualitative analysis: finding information about TBI, managing emotions and behaviors, physical care, instrumental care, and caregiver’s own emotional and health needs. Experiences varied depending on time since injury, discharge disposition, functional neurologic outcome, caregiver access to resources, and likely multiple additional other factors. Conclusions: This study adds to current knowledge about TBI from the patients’ and caregivers’ perspectives. Caregivers and patients reported that needs evolved over time. At three months, few moderate to severe TBI patients are well enough to be interviewed. Patient-centered future studies should include TBI survivors’ caregiver needs and concerns.
Erin Haynes, Dr.P.H. (Committee Chair)
Opeolu Adeoye, M.D. (Committee Member)
Christopher Lindsell, Ph.D. (Committee Member)
26 p.

Recommended Citations

Citations

  • Kreitzer, N. (2018). Unmet Needs of Patients and Caregivers following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission [Master's thesis, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1543839577899864

    APA Style (7th edition)

  • Kreitzer, Natalie. Unmet Needs of Patients and Caregivers following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission. 2018. University of Cincinnati, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1543839577899864.

    MLA Style (8th edition)

  • Kreitzer, Natalie. "Unmet Needs of Patients and Caregivers following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission." Master's thesis, University of Cincinnati, 2018. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1543839577899864

    Chicago Manual of Style (17th edition)