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How Much We Tell Our Patients: Counseling Differences between Genetic Counselors and Other Providers.

Feldman, Jessica S
http://rave.ohiolink.edu/etdc/view?acc_num=ucin1592135842556374

Abstract Details

2020, MS, University of Cincinnati, Medicine: Genetic Counseling.
Purpose: Determine if involvement of a genetic counselor (GC) during the genetic testing process impacts documentation of pre- and post-test genetic counseling. Methods: A retrospective chart review of 467 participants, who had send-out genetic testing through Cincinnati Children’s Hospital Medical Center between July 2016 and June 2018, was performed. A GC was involved for 223 participants (GC group), and not involved for 244 participants (non-GC group). Categorical, binomial variables were abstracted from the medical record, and frequency of documentation of those variables was compared between the GC and non-GC groups using Fisher’s exact test. Results: For all pre- and post-test genetic counseling variables except one, description of the genetic test, documentation occurred more frequently in the GC group compared to the non-GC group (all p <0.005). When comparing participants with only a genetic physician involved (GP group), the GC group had more documentation of a majority of genetic test counseling variables (all p <0.005), with the exception of any test description, negative test results, and family testing recommendations. Except for documentation of test description, the GC group also had more documentation for all other variables compared to participants with only a non-genetics physician (NGP group) (all p <0.001). Conclusion: Involvement of a GC during the genetic testing process was associated with increased documentation of most pre- and post-test genetic counseling variables. This may indicate that more comprehensive pre- and post-test genetic counseling is performed when a GC is involved. Further research directly analyzing genetic counseling provided is needed to provide further insight.
Melanie Myers, Ph.D. (Committee Chair)
Kathleen Collins, M.S. (Committee Member)
Hua He, M.S. (Committee Member)
Katherine Healy, M.S (Committee Member)
Chinmayee Nagaraj, M.S. (Committee Member)
Emily Wakefield, M.S. (Committee Member)
53 p.
Genetics
genetic counseling; genetic testing; documentation; informed consent; results disclosure

Recommended Citations

Citations

  • Feldman, J. S. (2020). How Much We Tell Our Patients: Counseling Differences between Genetic Counselors and Other Providers. [Master's thesis, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1592135842556374

    APA Style (7th edition)

  • Feldman, Jessica. How Much We Tell Our Patients: Counseling Differences between Genetic Counselors and Other Providers. 2020. University of Cincinnati, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1592135842556374.

    MLA Style (8th edition)

  • Feldman, Jessica. "How Much We Tell Our Patients: Counseling Differences between Genetic Counselors and Other Providers." Master's thesis, University of Cincinnati, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1592135842556374

    Chicago Manual of Style (17th edition)

ucin1592135842556374
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This open access ETD is published by University of Cincinnati and OhioLINK.