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Academic Challenges and School Service Utilization in Children with Sickle Cell Disease

Karkoska, Kristine A
http://rave.ohiolink.edu/etdc/view?acc_num=ucin1623166249681691

Abstract Details

2021, MS, University of Cincinnati, Medicine: Clinical and Translational Research.
Objectives: To describe the academic concerns and risk strata of a pediatric sickle cell population as identified through a parent-directed screening tool and to compare the rates of these concerns to actual school service utilization in the clinic population. Study Design: We completed a retrospective review of patients with sickle cell disease (SCD) referred to the school intervention program during the 2017-2018 and 2018-2019 school years due to a school-related concern raised by parents or noted by the clinical team. All parents completed the Brief School Needs Inventory (BSNI), a validated parent-response tool used to stratify academic risk. Rates of special education services, grade retention, and results from neuropsychological testing were captured. Clinical history, the use of disease-modifying therapy, and results from laboratory and neuroimaging studies were also obtained. Descriptive statistics were performed to examine demographic information, clinical history, and BSNI results. Results: 137 unique patients completed the BSNI during the study period, for a total of 181 events. Age range was 14 months – 19 years. According to BSNI risk-stratification, 45% of patients were deemed low, 36% moderate, and 19% high academic risk. Over half of parents were concerned about their ability to advocate for their child’s needs. Despite legal qualification for a Section 504 accommodation plan, only 20% had established plans. Academic concerns were common with 31% of children reporting an Individualized Education Program and 20% with grade retention/remediation. Conclusions: Concerns for academic challenges remain high amongst parents of children with SCD; however, school service utilization remains disproportionately low due to numerous reasons.
Scott Langevin, Ph.D. (Committee Chair)
Dean Beebe (Committee Member)
Patrick McGann (Committee Member)
Nanhua Zhang, Ph.D. (Committee Member)
43 p.
Surgery
sickle cell disease; neurocognition; academic attainment

Recommended Citations

Citations

  • Karkoska, K. A. (2021). Academic Challenges and School Service Utilization in Children with Sickle Cell Disease [Master's thesis, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1623166249681691

    APA Style (7th edition)

  • Karkoska, Kristine. Academic Challenges and School Service Utilization in Children with Sickle Cell Disease. 2021. University of Cincinnati, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1623166249681691.

    MLA Style (8th edition)

  • Karkoska, Kristine. "Academic Challenges and School Service Utilization in Children with Sickle Cell Disease." Master's thesis, University of Cincinnati, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1623166249681691

    Chicago Manual of Style (17th edition)

ucin1623166249681691
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This open access ETD is published by University of Cincinnati and OhioLINK.