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Aging With Invisible Disability: A Pilot Study on Experiences of Living with Dysautonomia and Expectations for Aging

Goldstein, Chelsea

Abstract Details

2019, Master of Gerontological Studies, Miami University, Gerontology.
The framers of successful aging envisioned long lives that were relatively disease free. This model has been criticized, particularly in its applicability to individuals with disabilities, many of whom have lived with disabilities throughout their lives. Although there have been recent efforts to include a disability framework in the successful aging model, these adaptations do not specifically address how individuals with invisible disability expect to age. Therefore, the purpose of this study is to evaluate how the six elements of the successful aging with a disability framework are associated with feeling prepared to age among individuals with dysautonomia—a chronic, invisible, and disabling condition. Data come from a cross-sectional, pilot survey regarding experiences of living with dysautonomia conducted in 2018. Logistic regression assessed the associations between the six elements and preparedness to age with dysautonomia. It was also used to assess if availability, accessibility, and appropriateness of medical care were individually associated with preparedness to age. Two of the six elements, autonomy and choice and effective compensation, were significantly associated with preparedness to age, while availability, accessibility, and appropriateness of medical care were not significantly associated. Findings suggest that self-efficacy and chronic disease management may be important to this population.
Robert Applebaum (Committee Chair)
Sara McLaughlin (Committee Member)
Katherine Abbott (Committee Member)
31 p.

Recommended Citations

Citations

  • Goldstein, C. (2019). Aging With Invisible Disability: A Pilot Study on Experiences of Living with Dysautonomia and Expectations for Aging [Master's thesis, Miami University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=miami1563449577222185

    APA Style (7th edition)

  • Goldstein, Chelsea. Aging With Invisible Disability: A Pilot Study on Experiences of Living with Dysautonomia and Expectations for Aging. 2019. Miami University, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=miami1563449577222185.

    MLA Style (8th edition)

  • Goldstein, Chelsea. "Aging With Invisible Disability: A Pilot Study on Experiences of Living with Dysautonomia and Expectations for Aging." Master's thesis, Miami University, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=miami1563449577222185

    Chicago Manual of Style (17th edition)