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Parental Perspectives of Children Born With Cleft Lip and/or Palate: A Qualitative Assessment of Concerns, Satisfaction, and Suggestions for Healthcare Improvements and Interventions

Rankin, Sara C.
http://rave.ohiolink.edu/etdc/view?acc_num=ucin1092780619

Abstract Details

2004, MS, University of Cincinnati, Allied Health Sciences : Genetic Counseling.
Qualitative interviews were completed with parents of children under the age of one who were born with cleft lip and/or palate. This study characterizes parental concerns and stresses during the first year of their children’s lives and clarifies what parental expectations of healthcare professionals. Concerns included stress of surgeries before and after the procedure(s), difficulty with feeding, and the social and cosmetic implications for their child. All participants were satisfied with their children’s care. Interventions identified as effective included repetition of information, showing pictures of other children (before and after surgery), and anticipatory guidance about surgeries and their children’s development. Parents want healthcare professionals to use more written and visual information, to have more contact with other parents of children born with clefts, and would like healthcare professionals outside the Craniofacial Center to be more knowledgeable about cleft lip and/or palate.
Howard Saal (Advisor)
39 p.
cleft; cleft lip; cleft palate; craniofacial; care; healthcare; professionals; parental; parent; perspective; stress; needs; concerns; child; qualitative

Recommended Citations

Citations

  • Rankin, S. C. (2004). Parental Perspectives of Children Born With Cleft Lip and/or Palate: A Qualitative Assessment of Concerns, Satisfaction, and Suggestions for Healthcare Improvements and Interventions [Master's thesis, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1092780619

    APA Style (7th edition)

  • Rankin, Sara. Parental Perspectives of Children Born With Cleft Lip and/or Palate: A Qualitative Assessment of Concerns, Satisfaction, and Suggestions for Healthcare Improvements and Interventions. 2004. University of Cincinnati, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1092780619.

    MLA Style (8th edition)

  • Rankin, Sara. "Parental Perspectives of Children Born With Cleft Lip and/or Palate: A Qualitative Assessment of Concerns, Satisfaction, and Suggestions for Healthcare Improvements and Interventions." Master's thesis, University of Cincinnati, 2004. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1092780619

    Chicago Manual of Style (17th edition)

ucin1092780619
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© 2004, all rights reserved.
This open access ETD is published by University of Cincinnati and OhioLINK.