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Parents' and adolescents' access to and impressions of pharmacogenetic results viewed within a patient portal

Reardon, Meghann
http://rave.ohiolink.edu/etdc/view?acc_num=ucin1467988096

Abstract Details

2016, MS, University of Cincinnati, Medicine: Genetic Counseling.
Background: Pharmacogenetic testing informs healthcare providers of patient’s risk of adverse reactions or the likelihood that a patient will respond to a specific medication. One way that patients are now able to access test results is through online patient portals linked to electronic medical records. The objective of this study was to assess parents’ and adolescents’ access to and impressions of pharmacogenetic test results in a patient portal. Methods: The target population consisted of adolescents and parents of children and adolescents who had pharmacogenetic testing and registered for the patient portal. Invitations were e-mailed or mailed to 453 parents and 323 adolescents. An investigator-developed questionnaire was used to assess parent’s/guardian’s and adolescent’s access to personal health records and pharmacogenetic reports. Participants’ response to results, ability to read results reports, perceived actionability of pharmacogenetic results, and perceived utility of pharmacogenetic results were also measured. Comparisons were made using Fisher’s exact test, and significance was set at p-values =0.05. Results: Questionnaires were completed by 61 parents and 29 adolescents. Two-thirds of adolescents and almost half of guardians were not aware that pharmacogenetic testing was a genetic test. Parents with at least a four-year college degree were more likely to report need to speak with their child’s doctor about the results (p=0.041). We found no difference in rated readability of the report nor in perceived utility of the result between guardians and adolescents. We found no difference in positive or negative feelings about results based on the type of pharmacogenetic test. Conclusion / Summary: While most parents and adolescents rated the reports readable and useful, there was some general confusion about the results being genetic tests. More research is needed to assess the educational needs of both parents/guardians and adolescents when administering pharmacogenetic testing.
Cynthia Prows, R.N. M.S.N. (Committee Chair)
Drew Barzman, M.D. (Committee Member)
Xue Zhang, Ph.D. (Committee Member)
John Lynch, Ph.D. (Committee Member)
78 p.
Genetics
pharmacogenomics; pharmacogenetics

Recommended Citations

Citations

  • Reardon, M. (2016). Parents' and adolescents' access to and impressions of pharmacogenetic results viewed within a patient portal [Master's thesis, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1467988096

    APA Style (7th edition)

  • Reardon, Meghann. Parents' and adolescents' access to and impressions of pharmacogenetic results viewed within a patient portal. 2016. University of Cincinnati, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1467988096.

    MLA Style (8th edition)

  • Reardon, Meghann. "Parents' and adolescents' access to and impressions of pharmacogenetic results viewed within a patient portal." Master's thesis, University of Cincinnati, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1467988096

    Chicago Manual of Style (17th edition)

ucin1467988096
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© 2016, all rights reserved.
This open access ETD is published by University of Cincinnati and OhioLINK.