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Transition Readiness in Adolescents and Young Adults with Sickle Cell Disease

Goldstein, Alana L.
http://orcid.org/0000-0002-2322-5822
http://rave.ohiolink.edu/etdc/view?acc_num=xavier1439143927

Abstract Details

2015, Doctor of Psychology (Psy.D.), Xavier University, Psychology.
Transition planning has emerged as a standard component of pediatric care, ensuring that adolescents and young adults (AYA) have the skills and knowledge to effectively transition to the adult healthcare system. However, AYA with sickle cell disease (SCD) face worsening disease status as they advance into adulthood, coupled with low ratings of transition readiness (TR), poor self-management skills, and limited knowledge of the transition process. The present study examined the relationship between TR and chronological age, disease severity, health-related quality of life (HRQL), and disease self-efficacy in a sample of 79 AYA with SCD (ages 13-22) from an urban pediatric medical center. Results indicated that chronological age accounts for a significant proportion of the variance in TR, with young adults showing increased TR relative to adolescents. Significant differences also emerged in HRQL across disease severity groups, such that AYA with severe SCD evidenced poorer HRQL than patients with mild SCD. Study findings contribute to our growing understanding of TR and may assist healthcare providers as they aim to improve TR in AYA with SCD and identify patients at-risk for transition difficulties.
Janet Schultz, Ph.D., ABPP (Committee Chair)
Lori Crosby, Psy.D. (Committee Member)
Nicholas Salsman, Ph.D. (Committee Member)
46 p.
Clinical Psychology; Health Care
Transition readiness; adolescents and young adults - AYA; sickle cell disease - SCD

Recommended Citations

Citations

  • Goldstein, A. L. (2015). Transition Readiness in Adolescents and Young Adults with Sickle Cell Disease [Doctoral dissertation, Xavier University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=xavier1439143927

    APA Style (7th edition)

  • Goldstein, Alana. Transition Readiness in Adolescents and Young Adults with Sickle Cell Disease. 2015. Xavier University, Doctoral dissertation. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=xavier1439143927.

    MLA Style (8th edition)

  • Goldstein, Alana. "Transition Readiness in Adolescents and Young Adults with Sickle Cell Disease." Doctoral dissertation, Xavier University, 2015. http://rave.ohiolink.edu/etdc/view?acc_num=xavier1439143927

    Chicago Manual of Style (17th edition)

xavier1439143927
307
© 2015, all rights reserved.
This open access ETD is published by Xavier University Psychology and OhioLINK.